A three-year-old girl suffering from a rare genetic disorder has approached the Delhi High Court through her father, seeking immediate government financial assistance for a life-saving bone marrow transplant.
The family has urged the court to direct the Union Government to release the required funds without delay, arguing that any further wait could seriously threaten the child's life.
The petition seeks directions to the Ministry of Health and Family Welfare to sanction and release the entire amount required for the child's haploidentical bone marrow transplant and post-operative treatment directly to Apollo Hospital, Chennai.
The treatment, including the transplant and post-operative care, is estimated to cost approximately ₹40 lakh, and the family has exhausted its savings on diagnosis and preliminary treatment.
The plea also relies on a prescription issued by AIIMS Delhi in April 2026, which allegedly acknowledged that the institution lacked the facilities and resources necessary to provide the specialised treatment required by the child.
The family cites the National Policy for Rare Diseases, 2021, and argues that patients suffering from rare diseases are entitled to government financial assistance, and that denial of timely financial assistance violates Articles 14 and 21 of the Constitution.
